What is a Patient and Public Research Partner?
A Patient and Public Research Partner is a patient, caregiver, or community member who works with researchers to provide expertise, knowledge, and skills. Someone who uses the health and social care system knows what works and does not work. This information helps researchers see things through the eyes of a patient or the public.
Why do we need Patient and Public Research Partners?
Research groups and the government are realizing that patient and public partnership in health and social care research is important. Public involvement helps to inform research so that it can benefit the public.
How can partners be involved?
Partners can help to:
• Design the research questions
• Plan research
• Collect and analyze data
• Develop conclusions based on the analysis
• Share findings
Why should you become a Patient and Public Research Partner?
A. Researchers need to learn about your experiences.
You have knowledge and experience as a patient or caregiver. Sharing these experiences with the researchers can help to develop the best research studies possible.
B. You can contribute to improving the health and social care system.
Research can be used to develop and test new ways to deliver care. Your insights can help researchers know how the health and social care system could work better.
C. You can contribute to research that examines the cost of the health and social care system.
Your insights can help researchers find better ways to spend health and social care dollars.
D. You can learn how research can lead to improvements in health and social care delivery.
Research can be used to develop and test new ways to deliver care. Your insights can help researchers know how the health and social care system could work better.
Will you receive training?
Absolutely! You will partner with researchers in teams who can help guide you and answer your questions.
Will you be paid and acknowledged?
Absolutely! As a Patient and Public Research Partner, you will be paid for your time and travel costs. Your input will be acknowledged, as we value your insights.
What is your commitment?
You can decide with the research team what activities interest you most. As a research partner, you can decide how much time you can commit. You can decide when you want to start and stop taking part in the research.
