Aging, Community and Health Research Group (ACHRU)

McMaster University

Studies and Research

Funded by
CIHR

core Study 5

Evaluation of a Transition Intervention for Family Caregivers of Persons with Alzheimer's Disease and Multiple Chronic Conditions

With the number of Canadians with Alzheimer’s disease (AD) growing, supporting family care partners of persons with AD is critical. Family caregivers provide about 90 per cent of in-home care for persons with AD, and the care is often difficult due to co-morbidities in persons with AD. Family caregivers of older persons with AD and MCC experience significant, complex, distressing transitions such as changes to their environment, roles and relationships, physical and mental health, isolation, and taking on new tasks. A Transition Toolkit was developed for family caregivers of persons with AD living at home, to support caregivers through transitions and increase their self-efficacy, hope, and quality of life (QOL).

Through this pragmatic mixed methods randomized controlled trial we expect to find that family caregivers receiving the Toolkit plus volunteer support will show greater improvement in hope, self-efficacy and QOL, at no additional cost from a societal perspective, compared with those receiving the Toolkit alone or usual care. The results will inform policy and practice as the Toolkit can be easily revised for local contexts and scalable in terms of posting on websites such as the AD Society.

 

Publication in BMC Geriatrics

Publication in Journal of Medical Internet Research 

Research Summary

 

  • Wendy Duggleby
    Professor
    University of Alberta
    Faculty of Nursing
  • Jenny Ploeg
    Professor
    McMaster University School of Nursing
    Department of Health, Aging and Society
  • Carrie McAiney
    Associate Professor
    McMaster University
    Department of Psychiatry & Behavioural Neurosciences
  • Maureen Markle-Reid
  • Dorothy Forbes
  • Sunita Ghosh
  • Shelley Peacock
  • Allison Williams
  • Tracey Chambers
  • Meghna Mahajan
  • Tracy Wildeman
  • Loreen Pollard

Publications and Activities relating to this study:

Informal Caregivers Need Better Support

Change is urgently needed to better support our caregivers, say Drs. Jenny Ploeg and Maureen Markle-Reid in The Conversation Canada.

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New Publication: How Researchers Are Evaluating an Online Support Tool for Caregivers of Patients with Alzheimer’s Disease

The ACHRU’s latest journal article in BMC Geriatrics, outlines how a randomized control trial (RCT) is being used to evaluate My Tools 4 Care (MT4C). The internet-based intervention is aimed at supporting caregivers through changes they experience in their roles, relationships and health.

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ACHRU Trainee Annie Lam Receives MScN

The resilience of caregivers and their ongoing efforts to support family members is what inspires Annie Lam and it continues to drive her nursing practice and research.

Read More