Aging, Community and Health Research Group (ACHRU)

McMaster University

Patient & Public Engagement

Patient and Public Resources

Title Level Link
Methodology 101 - Patient Centered Outcomes Research Institute (PCORI) Beginner https://www.pcori.org/sites/default/files/PCORI-Methodology-101-Training...
Toolkit on Patient Partner Engagement in Research - TOPPER, Wisconsin Network for Research Support Beginner https://www.hipxchange.org/TOPPER
Public Information Pack: How to get actively involved in NHS, public health and social care research - NHS Beginner https://www.invo.org.uk/posttypepublication/public-information-pack-pip-...
Getting Started Public Information Pack: How to get actively involved in NHS, public health and social care research - NHS Beginner https://www.invo.org.uk/posttypepublication/public-information-pack-pip-...
Jargon Buster Public Information Pack: How to get actively involved in NHS, public health and social care research - NHS Beginner http://www.invo.org.uk/wp-content/uploads/2016/02/10692_INVOLVE_PIP3_WEB...
Top Tips for Public Involvement in Research - INVOLVE NHS Beginner http://www.invo.org.uk/resource-centre/learning-and-development/top-tips/
Patient and public involvement in research - Healthtalk Beginner http://www.healthtalk.org/peoples-experiences/medical-research/patient-a...
Clinical trials - Healthtalk Beginner http://www.healthtalk.org/peoples-experiences/medical-research/clinical-...
Making Sense of Health Evidence: The Informed Consumer - NHS Beginner https://www.futurelearn.com/courses/informed-health-consumer
Understanding clinical trials - NHS Beginner https://www.nhs.uk/conditions/clinical-trials/
Understanding Health Research - MRC Beginner https://www.understandinghealthresearch.org/
Partners in Research (PIR) - Knowledge Translation Program Beginner https://knowledgetranslation.net/education-training/partners-in-research/
For citizens partnering in research - Patients Canada Beginner http://ossu.ca/wp-content/uploads/Orientation_to_research_pub_2016.pdf
Unite de soutient  Beginner http://unitesoutiensrapqc.ca/composante/strategie-de-recherche/
Webinar - Becoming a Patient Partner in Health Research - BC SUPPORT Unit Beginner https://www.youtube.com/watch?v=5HxyDbOOrfY
Everyone Can Do Research: A Plain Language Guide on How to Do Research - Access Alliance Beginner https://accessalliance.ca/wp-content/uploads/2016/12/Everyone-can-do-res...
Patient & Public Advisors Handbook - Vancouver Costal Health Beginner http://vchnews.ca/wp-content/uploads/sites/26/2015/08/PatientandPublicAd...
Improving Healthcare Through Clinical Research - NHS Intermediate https://www.futurelearn.com/courses/clinical-research
Mini-course Starter Kit - Community Advisory Boards - European Patient's Academy  Intermediate https://www.eupati.eu/starter-kits/mini-course-starter-kit-community-adv...
Understanding Research Methods - Coursera Intermediate https://www.coursera.org/learn/research-methods
Jargon Buster for Research Terms - CIHR Intermediate http://www.cihr-irsc.gc.ca/e/documents/cihr_jargon_buster-en.pdf
Resources and training for patients - Patient-Oriented Research Ontario Intermediate https://ossu.ca/for-patients/training/
A List of Ontario Health Care Acronyms: For Patient and Caregiver Advisors - Health Quality Ontario Intermediate http://www.hqontario.ca/Portals/0/documents/pe/list-of-health-care-acron...
Engagement Methods - Centre for Healthcare Innovation Patient and Public Engagement Intermediate https://chimb.ca/sub-sites/1-patient-engagement%20?page=75-how-to-engage
TCPS 2 Tutorial Course on Research Ethics - Panel on Research Ethics Government of Canada Intermediate http://www.pre.ethics.gc.ca/eng/education_tutorial-didacticiel.html
Glossary of Terms - BC SUPPORT Unit Intermediate http://bcsupportunit.ca/glossary
Patient Engagement in Research: A Toolkit for Patient-Family Advisory Councils Intermediate http://planetree.org/wp-content/uploads/2017/09/%20Patient-Engagement-in...
e-learning modules - University Without Walls Intermediate http://www.universitieswithoutwalls.ca/emodules/
CIHR's Citizen Engagement Handbook - CIHR Intermediate http://www.cihr-irsc.gc.ca/e/documents/ce_handbook_e.pdf