Aging, Community and Health Research Group (ACHRU)

McMaster University

Patient & Public Engagement

Resources for Researchers

Title Level Link
Experience-based co-design (EBCD): Point of Care Foundation Beginner https://www.pointofcarefoundation.org.uk/resource/experience-based-co-de...
What is public involvement in research? - INVOLVE NHS Beginner https://www.invo.org.uk/find-out-more/what-is-public-involvement-in-rese...
Tools for partnering with patients in health research Beginner https://ceppp.ca/en/our-projects/evaluation-toolkit/
Engaging Veterans in Research - Health Innovation Program Intermediate https://www.hipxchange.org/EngagingVeterans
Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS) Intermediate https://www.hipxchange.org/HARPS
Evidence library - INVOLVE NHS Intermediate http://www.invo.org.uk/resource-centre/libraries/evidence-library/
Involving People Living with Dementia - Making Involvement Count Intermediate https://achru.mcmaster.ca/patient-public-engagement-other-resources/what-works-resource-pack.pdf
Putting it into practice - INVOLVE NHS Intermediate http://www.invo.org.uk/resource-centre/libraries/putting-it-into-practice/
The James Lind Alliance Guidebook for involving patient and public - NHS Intermediate http://www.jla.nihr.ac.uk/jla-guidebook/downloads/Version-8-JLA-Guideboo...
Patient/Caregiver Surveys - Patients Canada Intermediate http://ossu.ca/wp-content/uploads/EvaluationSurveysPatient_2016.pdf
Patient Engagement Heard and Valued - Fraser Health Intermediate https://www.cfhi-fcass.ca/sf-docs/default-source/patient-engagement/awes...
Patient Engagement Resource Hub - Canadian Foundation for Healthcare Improvement Intermediate https://www.cfhi-fcass.ca/WhatWeDo/PatientEngagement/PatientEngagementRe...
Patient Engagement Blog "Knowledge Nudge" - Centre for Healthcare Innovation Intermediate https://medium.com/knowledgenudge/whos-who-fec72a568d7d
Patient-Oriented Research Training Program - Newfoundland and Labrador SUPPORT Intermediate http://www.nlsupport.ca/Training.aspx
Hamilton Seniors Isolation Impact Plan Intermediate http://socialisolation.ca/project/info-sheet-7-conducting-research-with-...
The PCORI Enagement Rubric: Promising Practices for Partnering in Research - Patient Centered Outcomes Research Institute (PCORI) Advanced http://www.annfammed.org/content/15/2/165.full.pdf+htm
Engagement Rubric for Applicants - Patient Centered Outcomes Research Institute (PCORI) Advanced https://www.pcori.org/sites/default/files/Engagement-Rubric.pdf
Webinars - Patient Centered Outcomes Research Institute (PCORI) Advanced https://www.pcori.org/engagement-resources/engaging-patient-partners-res...
Sample Engagement Plans - Patient Centered Outcomes Research Institute (PCORI) Advanced https://www.pcori.org/sites/default/files/PCORI-Sample-Engagement-Plans.pdf
Patient Engagement Workbook - Health Care Systems Research Network Advanced https://www.hipxchange.org/HCSRNEngagementWorkbook
Developing training and support for public involvement in research - NHS Advanced http://www.invo.org.uk/wp-content/uploads/2015/06/8774-INVOLVE-Training-...
Information for researchers - INVOLVE NHS Advanced http://www.invo.org.uk/find-out-more/how-to-involve-people/information-f...
Changing Our Worlds: examples of user-controlled research in action - INVOLVE NHS Advanced http://www.invo.org.uk/wp-content/uploads/documents/INVOLVEChangingourwo...
Centre d'excellence sur le partenariat avec les patients et le public Advanced https://ceppp.ca/en/
Research Methods Workshop - Health System Performance Research Network Advanced http://www.hsprn.ca/?p=189
Patient and Family Engagement Resource Compendium - HRET Advanced http://www.hpoe.org/Reports-HPOE/2015/pfe-compendium.pdf
Primary Health Care - Patient Engagement Resource Centre (PERC) Advanced https://www.patientengagement-phcresearch.com/study-conduct