Aging, Community and Health Research Group (ACHRU)

McMaster University

Patient & Public Engagement

Resources for Researchers

Title Level Link
Experience-based co-design (EBCD): Point of Care Foundation Beginner
What is public involvement in research? - INVOLVE NHS Beginner
Tools for partnering with patients in health research Beginner
Engaging Veterans in Research - Health Innovation Program Intermediate
Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS) Intermediate
Evidence library - INVOLVE NHS Intermediate
Involving People Living with Dementia - Making Involvement Count Intermediate
Putting it into practice - INVOLVE NHS Intermediate
The James Lind Alliance Guidebook for involving patient and public - NHS Intermediate
Patient/Caregiver Surveys - Patients Canada Intermediate
Patient Engagement Heard and Valued - Fraser Health Intermediate
Patient Engagement Resource Hub - Canadian Foundation for Healthcare Improvement Intermediate
Patient Engagement Blog "Knowledge Nudge" - Centre for Healthcare Innovation Intermediate
Patient-Oriented Research Training Program - Newfoundland and Labrador SUPPORT Intermediate
Hamilton Seniors Isolation Impact Plan Intermediate
The PCORI Enagement Rubric: Promising Practices for Partnering in Research - Patient Centered Outcomes Research Institute (PCORI) Advanced
Engagement Rubric for Applicants - Patient Centered Outcomes Research Institute (PCORI) Advanced
Webinars - Patient Centered Outcomes Research Institute (PCORI) Advanced
Sample Engagement Plans - Patient Centered Outcomes Research Institute (PCORI) Advanced
Patient Engagement Workbook - Health Care Systems Research Network Advanced
Developing training and support for public involvement in research - NHS Advanced
Information for researchers - INVOLVE NHS Advanced
Changing Our Worlds: examples of user-controlled research in action - INVOLVE NHS Advanced
Centre d'excellence sur le partenariat avec les patients et le public Advanced
Research Methods Workshop - Health System Performance Research Network Advanced
Patient and Family Engagement Resource Compendium - HRET Advanced
Primary Health Care - Patient Engagement Resource Centre (PERC) Advanced